Sunday 20 October 2013

Merry Christmas- Help Bring HOPE!

Merry Christmas, friends! I hope the holidays are turning out jolly and awesome for one and all!

I have been posting this link daily on my facebook page: it is the page to vote for the HDSA (Huntington's Disease Society of America) to win $50,00 in social media funding- thus promoting awareness! Awareness can lead to more funding and donations, which will eventually lead to successful treatments, maybe even a cure one day!

As I said before, my Mom suffers from this disease. It is a horrible thing. It's genetic, and they can do genetic testing to count your sequence of the CAG repeating in your DNA-- over a certain number means you will eventually start showing symptoms of the disease, that you have it, and could have passed it down to your children (a child of an HD positive parent has a 50/50chance of inheriting it-- I myself am not ready to be tested....).

This disease takes away your sanity, your ability to control your own muscles, all of your independence. You can pass away from complications such as infection (it lowers your immune system) or even breathing in air too fast and choking (you lose control of involuntary muscle movement).

So, this holiday, share the gift of hope, and vote for the HSDA in the link above!

Happy and Safe holidays to my friends in the blog world! Enjoy this precious time with your family!!

Born This Way

So, I am a pretty quiet and seemingly laid-back person. Quite frankly, my quietness makes it difficult for me to make friends. I have always been quiet- I rack it up to growing up from utero on with a loud mouth fraternal twin sister.

*All our baby pictures, she has her mouth open and mine is shut lol*
I grew up not only as the 'follower twin', but also as the middle child (I also have a younger sister, about 1.5 years younger). So I was quiet and shy, but a quirky li'l' thing

*they saw me rollin'...*


*gimme somma that Kool-Aid smile!*



We started Kindergarten in different classrooms. I grew up in a pretty small town, and when high school graduation rolled around, almost everyone remembered me in Kindergarten crying and crying because I was all alone! I didn't have a voice- my sister was my voice! I was scared and on my own.


*frowny-est Kindergarten picture EVAAAR*


As school continued, I continued to be the shy, quiet one. And, thanks to puberty, the fat chic with bad skin and glasses. So there I was; quiet, overweight, and hiding a funny quirky side










I joined Band in 4th grade, and stuck with it all through school. It was depressing to me, since no one in my small group of friends were in it. But it was something I loved to do. It was lonely, but some times, playing trombone was all I had.

So I went to college. Years of being called 'Sea Cow', 'Homo-Stacey-Is' (thank you, middle school bio), 'Pug Nose', and I'm sure various other things they thought too rude to say to my face [cuz, y'know, the other names are so nice and complimentary...] I went for Music Education. I went, thinking I'd be surrounded by like-minded kids, ready to take on the future!



Well, I found out college was worse than high school. Not only was I getting picked on during the day, but also during the afternoon, evening, and night. Weekends were a treat, because it was usually by drunk groups of guys barking at me and making comments on my weight. I was scared to walk back to my dorm at night- so I'd either stay as long as possible at a friend's dorm, or practice in the Cultural Arts center until I just had to go back to go to bed. I worked weekends, never partied, and was still the quiet fat chic. I remember dreaming on more than one occasion I would get in an accident or something, and all these people would pop out of the woodwork to support my recovery and end up being great friends with me forever [lol it's ok to chuckle at this--I look back now and it sounds ridiculous!]

My Mom was not well. We knew her sister had Huntington's Disease, but Mom had told us she'd be tested for it and it was negative. She was changing-- various dementia type symptoms popping up, motor skills decreasing... my twin sister called me every week telling me I needed to quit school to come home and help her. I had one year left- so close to my degree, I couldn't go home when I was so close to accomplishing something great with myself!


The stress from the phone calls from my sister and trying to help my family financially (my mom just stopped going to work one day...no explanation) got to me- I forgot to hand in my financial aid paperwork on time. Midterms of my 8th semester o f college, I was forced to quit due to lack of money.

I moved home to help my sister, who promptly took advantage of me being there and was never home. I had no car, no money. When our younger sister came home from JobCorps a year later, I left and moved in with friends from NY. Things moved quick-- next thing I know I'm married and have 2 kids. Sold my trombone to help pay rent. Still picked on by people who worked with me in my dead end jobs.

Reality hit when doctors finally decided to test my Mom for Huntington's Disease. The test came back positive. As the child of someone with HD, you have a 50% chance of inheriting it.

So, now, here I am. turning 30 this year. I'm still quiet and fat. But now I have a family, and finally a job that I can move up in.


But, my immature daydream of having an accident and friends coming out of the woodworks? The "accident" part just might come true- Huntington's Disease is horrible. As I watch my mom go through and progress in this horrible disease, I worry about my future, about the future of my own little family.

Yesterday, I stopped at the grocery store after work for milk. Two college - aged guys were behind me in line. The magazine rack had one of those gossip papers, with unflattering pictures of famous women in bathing suits looking a little chunky. The guys laughed as one of them took the stack and turned them around so he wouldn't have to see it. I felt some rage inside-- guys like that.They are the reason I was so afraid to try ad find happiness, to search for a relationship with anyone when I was in school (or after, for that matter--I met my husband on livejournal lol)

Fat gals deserve to be happy just as much as those who are not over weight! We deserve the right to search for happiness, to have fun and not be scared of what's out there.

I may be the over weight, quirky, quiet wife, mother, and potentially a horrible, brain deteriorating disease, but I should never be afraid to be myself. Because, baby, I was born this way.

Bucket List

, I've mentioned I have a 'Bucket List' on a previous entry. Guess it makes sense to post some of it, eh?

1. I've always wanted to tell people about my epic high school crush!
2. I'd love to get to a body shape I am content with!
3.On a related note, I'd love to check off at the doc's with a clean bill of health!
4. I would LOVE to go back to college-- maybe not for music, but to come out of it with a bachelor's degree!
5. I think it would be awesome to take 3 trips with my husband- Vegas, Tokyo, and Paris
6. I'd love to RV across the USA! *cheesy? lol yeah...*
7. I want to take a family trip to Puerto Rico so the boys can see part of their heritage in action (it wouldn't hurt Hubs, either!)
8. I'd love to get published- either written word or music!
9. I'd love to see my kids grow into respecting young men!
10. I want to raise as much money as humanly possible for HD Research!
11. I'd love to have the wedding reception I never got to have- pretty dress and all!
12. I want to work back on my family geneology-- really take the effort and work on it!

Well-- those are a few, there are definitely more! I often wonder how many years I have to work on this bad boy-- never too early to start!

Narnia or Hogwarts?

When I was in fourth grade, we went to a local college to watch their production of 'The Lion, The Witch, and The Wardrobe'. I thought it was so awesome! When I found out there was a book, I was all on top of that! My teacher had a copy in the classroom library, and I read it with gusto. When the teacher saw how quickly I went through the book, she showed me there are 6 other books in the series; it was part of a much bigger story line by C.S. Lewis.

SIX MORE BOOKS JUST LIKE THIS ONE?!?! I was so excited: I convinced my parents to buy the set from the Scholastic BookOrder. The books were in there all the time, but I had no idea that 'Chronicles of Narnia' was what I should have been looking for.

I made it tradition for myself to read all 7 books every summer vacation, which I did until I left college.


Not to shabby-I kept pretty good care of this box 'o' paperbacks, considering how many moves it's been through! 'The Horse and His Boy' had to have the cover taped back on after an incident I no longer remember, but they are all there. I used to get lost in these stories, from Digory and Polly's discoveries all the way through Reepicheep's "Further up and further in!"

When the Harry Potter books came out, I have a friend who tried really hard to get me into them. She bought me the first book for christmas in 2002. I tried, but maybe I tried too hard? Or just felt like I was going against a world of stories that had been there for me growing up to discover a new, magical world. Either way, I never finished the book. This same friend took me to 3 or 4 of the movies (lol how sad, I don't remember... I think it was 3 though) and I just couldn't get into them.

I had no issues enjoying the Lord of the Rings trilogy, though... they're kind of on the same level, but...not really. LOTR is all fantasy. Harry Potter and Narnia are magical journeys involving regular, everyday, unsuspecting kids.

As a mother, I couldn't wait to let my kids read my Narnia books, or have me read them the stories.

Now that the Potter books are done, I have given great consideration of finally putting the effort in and reading the books- give them a chance. Thanks to the internet, I know how the whole thing ends, and I think the journey would appeal to my kids as much as those in the Narnia books.

So, I shall be an adult, and listen to what tons of pre-teens have been saying for years- "Read Harry Potter!"

...but maybe I'll do a run-through of Narnia first.

Narnia or Hogwarts?

When I was in fourth grade, we went to a local college to watch their production of 'The Lion, The Witch, and The Wardrobe'. I thought it was so awesome! When I found out there was a book, I was all on top of that! My teacher had a copy in the classroom library, and I read it with gusto. When the teacher saw how quickly I went through the book, she showed me there are 6 other books in the series; it was part of a much bigger story line by C.S. Lewis.

SIX MORE BOOKS JUST LIKE THIS ONE?!?! I was so excited: I convinced my parents to buy the set from the Scholastic BookOrder. The books were in there all the time, but I had no idea that 'Chronicles of Narnia' was what I should have been looking for.

I made it tradition for myself to read all 7 books every summer vacation, which I did until I left college.


Not to shabby-I kept pretty good care of this box 'o' paperbacks, considering how many moves it's been through! 'The Horse and His Boy' had to have the cover taped back on after an incident I no longer remember, but they are all there. I used to get lost in these stories, from Digory and Polly's discoveries all the way through Reepicheep's "Further up and further in!"

When the Harry Potter books came out, I have a friend who tried really hard to get me into them. She bought me the first book for christmas in 2002. I tried, but maybe I tried too hard? Or just felt like I was going against a world of stories that had been there for me growing up to discover a new, magical world. Either way, I never finished the book. This same friend took me to 3 or 4 of the movies (lol how sad, I don't remember... I think it was 3 though) and I just couldn't get into them.

I had no issues enjoying the Lord of the Rings trilogy, though... they're kind of on the same level, but...not really. LOTR is all fantasy. Harry Potter and Narnia are magical journeys involving regular, everyday, unsuspecting kids.

As a mother, I couldn't wait to let my kids read my Narnia books, or have me read them the stories.

Now that the Potter books are done, I have given great consideration of finally putting the effort in and reading the books- give them a chance. Thanks to the internet, I know how the whole thing ends, and I think the journey would appeal to my kids as much as those in the Narnia books.

So, I shall be an adult, and listen to what tons of pre-teens have been saying for years- "Read Harry Potter!"

...but maybe I'll do a run-through of Narnia first.

Welcome Wednesday Blog Hop!

This blog hop is pretty sweet! You can copy the code and the whole shi-bang shows up on your blog post! So you can keep up with who has linked to it super easy!

Just go to Take it From Me , where the hop started, follow, and link up!

I'm excited to do this and find some new blog pals!

Two Year Old Memories

Two years ago today, I was in a hospital bed recovering from the first surgery I ever had to have. But one of the best things to ever happen to me was the end result: A cesarean section to give birth to my Doozer!

I had been diagnosed with Gestational Diabetes at 36 weeks. I had to go in for non-stress tests twice a week AND a drs appointment once a week while still working a full time job.

I went on Maternity Leave at 38 weeks. At 37 weeks, I had an ultra sound to measure Dooz-in-dah-belly. His head measured at 40 weeks and his belly at 42. The midwife and Dr told me he was over 10 lbs and I'd have to either schedule an induction or a c-section, as soon as possible.

"As soon as possible" meant when the only local dr in town that does c-sections was available, because they had no faith in an induction working...

My midwife and dr? FLIPPED CRAP at the diagnosis of GD. Instead of praising pregnant hormone enraged Stacey who cut sugar and carbs drastically for the health of unborn Dooz,I got criticized just for having GD in the first place.

I will admit I have an awesome love of all food delicious. Cutting carbs to fit in the diabetic guidelines was HUGE for me, and I did it, dang it. All the midwife and dr saw was fat mama giving her unborn baby juvenile diabetes.

The surgeon was available when I was 39 weeks. We scheduled the induction for monday night. My dad took Bones, expecting to only have him two nights tops. Of course, my body and Dooz wanted nothing to do with induction-- 24 hours of drugs and I'd only dialated 1.5cm. We scheduled the c-section first thing Wednesday morning.

Thanks to unforeseen circumstances [horrible car accident taking up the Operating Room], I was not brought into the OR until 9pm. At 9:21, my Doozer was born.

I had to stay in the hospital with my Dooz until Saturday morning. I couldn't have visitors thanks to the H1N1 stuff going around. And Hubs had to go back to work Friday and Saturday. I was lonely, depressed...but I had my Baby Dooz!

Recovery sucked. No one would help us out, so I was at home "on bed rest" chasing a 2 and a half year old, nursing newborn, and trying to make sure my incision site stayed clean and in tact. I think back on the entire experience and am saddened. My 'Gigantor, 10+lb baby' was born 8lbs, 11.6oz at less than one week early. I know I could have given birth to him naturally. But you do what the drs tell you, right?

I don't think about it much, anymore. I'm more thinking about starting potty training and trying to get him and his brother to play in a civil manner! I have a permanent scar on my body to remind me of the depression I went through after that birth experience. After a drug free, natural birth with Bones, it was a shock physically, and more-so mentally. But again, in the end, I got my Handsome Blonde! As long as I remember that, the sadness will continue to be nothing more than a memory!

Confessions!

I've seen a lot of Mama's doing 'Motherhood Confessions', and thought I might give it a go!

Fun fact about me:

I [for reals] thought opossums were made up animals until I saw one on America's Funniest Home Videos when I was, like, 14.

I know what you're thinking... girl is crazy! But I'd never seen one! To me, they were a made up cross of a Barn owl and a ground hog!
You know you see it, now!

For real-- possums freak the crap outta me. When we lived in NY, there was a roadkill possum in the road- not like, squished flat, but like it ran into a car and knocked out or something. OMG. I screamed and ran! Heaven help me if I ever see one alive!

Do you have any weird things that freak you out? Share! It can't be as weird as me thinking possums were fake! haha!

[I have another weird fear--I'll save it for another post!]